If you know of a group or organisation that may be able to support our families please do let us know. Here are a few that we have found:
Contact A Family http://www.cafamily.org.uk/
Contact A Family is a nationwide charity that provides information, advice and support. They have a free telephone helpline which offers advice around education and health issues and benefits information.
They also run workshops and events for parents covering topics such as welfare and benefit reforms, challenging behaviour, sleep problems, transition onto adult services.
National Deaf Children’s Society http://www.ndcs.org.uk/
A large national charity supporting families of deaf children from birth-25. They have a free telephone helpline, a YouTube channel and free membership which then gives access to their full range of services that includes a wealth of online information for example on financial support, audiology, education and technology. The main website also has a large parent forum.
Northeast Autism http://www.ne-as.org.uk/
Part of a large nationwide organisation- the range of services includes schools, residential and short break care, adult care services, family support, outreach work
Disability North http://www.disabilitynorth.org.uk/
A user led charity which promotes independence, inclusion and choice for people with disabilities and older people which aims to support disabled and older people, their families and carers.
They can give information and advice on equipment, benefits and Direct Payments
Northeast Special Needs Network http://www.nsnn.org.uk/
NSNN is a parent led charity. Their staff offer individualised support to families with disabled children, from birth to age 25. They also support families with young people through their transition into adult services, as well as offering advocacy work, organising workshops and courses.